Community Center

When Emmalyn Hudson had a history project, she wrote about and portrayed Dr. Virginia Apgar.The choice of Apgar, originator of the Apgar score that evaluates…

Alice Odeke’s world was turned upside down when she was diagnosed with cardiac amyloidosis, a rare condition which has led to heart failure. The 58-year-old from…

A 69-year-old female presented with symptomatic atrial fibrillation. Cardiac amyloidosis was suspected due to an artificial intelligence clinical tool applied to…

Amara, you penned a post for our blog in May of 2022. Can you talk about what has changed with your mom since then?I’ll be honest. I’m heartbroken. The last few…

When Sally Cox was diagnosed with light chain amyloidosis (AL) in 2019, she was shocked. Not only had she never heard of the rare disease that causes abnormal…

In the realm of rare diseases like Amyloidosis, caregivers stand as pillars of strength, compassion, and support. Their unwavering dedication and selflessness often…

Having a genetic disease is one of life’s greatest calamities. I say this from my own experience, having been married for almost 27 years to someone who was…

– Family Health History Road Trip Program Aims to Inspire Conversations About Health History and Empower Families to Take Control of Their Health ––…

BackgroundLittle is known about what happens when patients and caregivers are involved in an academic setting as co-teachers and how healthcare professionals…

My hATTR story began in the mid-1960’s when my father, a healthy, strong, outdoorsy guy in his late 40’s started tripping, experiencing numbness, and having dizzy…