Disease Awareness/Support

Webinar AL Amyloidosis On October 26, 2021 the first ever World Amyloidosis Day will be organized by Amyloidosis Alliance and patient organisations from 18…

This year's event is dedicated to the passionate and growing community of amyloid patients, care providers, researchers and clinicians both locally and around the…

Donations are welcomed in both money and awareness item purchases. We currently offer wrist bands, pins, note cards, and polo shirts. If you wish to make a donation…

Amyloidosis Foundation is empowering patients through comprehensive range of services, including accurate up to date information. To promote awareness of…

Losing one's immune system is a serious consequence of a stem cell transplant, putting the body at risk for viral, fungal, and bacterial infections. Rebuilding the…

Rare Disease Day takes place every year on the last day of February. The purpose is to raise awareness about rare diseases and their impact on patient's lives. Most…

ATTR amyloidosis is a frequently unrecognized but increasingly important cause of cardiomyopathy and neuropathy. While relatively uncommon compared to other…

Patients with systemic amyloidosis should be considered at increased risk of complications and mortality in case of SARS-CoV2 infection. This may be particularly…

Some grocery store chains across the U.S. are beginning to offer special shopping hours dedicated to older adults who are among the most vulnerable to severe…

Jean-Christophe Fidalgo works as Administrator at the Association Francaise contre l'Amyloseexternal link, opens in a new tab. It is a charitable association that…