Feelings and Experiences

Maybe someday I'll write a post directed at the spouse of someone with a chronic illness and you'll be able to show it to your spouse and say "see, told ya...." but…

Former Penn State All-American defensive lineman Matt Millen's journey back to broadcast booth was chronicled in an episode of "The B1G Story" Tuesday night. Two…

Recently I saw a movie with Robert Redford, "All is Lost". Takes me back. Before we were married my future wife and I charted a bare boat Morgan 29' sloop in the…

La Amiloidosis es una enfermedad que tiene varios tipos, uno de ellos y el que casualmente Mallorca, donde naci es la A.hereditaria por transtirretina el quinto…

One week before his brother's formal diagnosis with familial amyloidosis in 2014, Vince O'Donnell discovered he carried the genes that predisposed him to familial…

In February 2014, Sondra Kunes was feeling a little more fatigued than usual, but wrote it off as being 54 and raising five children ranging from their early teens…

NBC-5 News anchor Rob Stafford will return to the air Monday, after months of grueling treatment for a rare blood disorder that gave him a harrowing look at "my own…

I am grateful to tell the story of my journey in and through the world of hematology and blood dyscrasisas. As I read the plight of so many of my comrades with…

This book sweeps the reader across nine years and four continents, in the fateful odyssey of an internationally acclaimed actor who was suddenly stricken with a…

Living with hATTR amyloidosis can cause stress and may make it hard to interact with others. It is important to remember that these are normal feelings following…