Patient Advocacy

Mar 01, 2024
"Light the Night for Amyloidosis" is an Amyloidosis Foundation awareness campaign created to draw attention to amyloidosis symptoms, diagnosis, treatment and…
Can you imagine living 11 years with a life-threatening disease you didn't know you had? For Walt, that's how long it took to learn that his symptoms were caused by…
Jean-Christophe Fidalgo works as Administrator at the Association Francaise contre l'Amyloseexternal link, opens in a new tab. It is a charitable association that…
Yves Ghiron is President at the Association Francaise contre l'Amyloseexternal link, opens in a new tab. It is a charitable association that was founded in 1994,…
Sara Sherwood was born in Kiryat Ata and did her graduation (BA) in Law and Geography, at the Hebrew University of Jerusalem. During her academic life, she also…
Daniel Drimer was born in 1955 in Romania and immigrated to Israel in 1970. He holds a Bachelor's degree in Aeronautical Engineering and until the year 2009, he…
Laurence Ronda is associated with the Association Francaise contre l'Amyloseexternal link, opens in a new tab. It is a charitable association that was founded in…
Fabio Almeida is the President of the Associacao Braseilera de Paramyloidose (ABPAR)external link, opens in a new tab. ABPAR promotes adequate means of treatment…
Carlos Heras-Palou qualified from the School of Medicine in Zaragoza (Spain) in 1988. Following House Officer and SHO jobs in England he obtained his FRCS in 1993…
The Amyloidosis Patient Registry is a new resource for the entire amyloidosis community from Amyloidosis Support Groupsexternal link, opens in a new tab. By…