Patient story

In February 2014, Sondra Kunes was feeling a little more fatigued than usual, but wrote it off as being 54 and raising five children ranging from their early teens…

Dona Osterhout was only 48 years old when she noticed that she was having a hard time keeping up when she went hiking and biking with her family. "At first, I…

Retired ophthalmologist Merrill Oaks was enjoying an active life and spending time with his family when he started to experience symptoms of kidney failure at 77…

When Ricardo rides his stationary bike he leaves the memory of heart failure further and further behind. After he was diagnosed with amyloidosis, specialists at…

Just informing everyone that on September 1, 2017, I was diagnosed with a rare blood disease called Al Amyloidosis. I call it "Amy" for short. May this year I had…

I live in Los Angeles in California but, as a performer, have had the good fortune to travel and work internationally for the past 50 or so years. My amyloidosis…

I am grateful to tell the story of my journey in and through the world of hematology and blood dyscrasisas. As I read the plight of so many of my comrades with…

This book sweeps the reader across nine years and four continents, in the fateful odyssey of an internationally acclaimed actor who was suddenly stricken with a…

Documenting my dad's journey with AL Amyloidosis. "When oceans rise, my soul will rest in Your embrace. For I am Yours and You are mine!"

My name is Jason Conway and I am a husband, father, teacher, and coach. I am 48 years old and have lived a pretty normal, healthy life. I have always been active…