Key Information
Source
Alnylam Pharmaceuticals, Inc.
Year
2020
summary/abstract
The Alnylam Act(R) program was created to provide access to genetic testing and counseling to patients as a way to help people make more informed decisions about their health.
* While Alnylam provides financial support for this program, tests and services are performed by independent third parties.
* Healthcare professionals must confirm that patients meet certain criteria to use the program.
* Alnylam receives de-identified patient data from this program, but at no time does Alnylam receive patient-identifiable information. Alnylam uses healthcare professional contact information for research and commercial purposes.
* Genetic testing is available in the US and Canada. Genetic counseling is only available in the US. Healthcare professionals or patients who use this program have no obligation to recommend, purchase, order, prescribe, promote, administer, use, or support any Alnylam product.
* No payers, including government payers, are billed for this program.
Abstract Source
https://www.alnylam.com/wp-content/uploads/pdfs/Alnylam_Act_hATTR_Patient.pdf