Key Information
Source
Alnylam Pharmaceuticals, Inc.
summary/abstract
hATTR amyloidosis is a genetic disorder that may affect you and others in your family. An open and honest conversation about your experience may encourage others to seek a diagnosis sooner and allow them to have more informed conversations with their doctor.
Creating awareness is an important first step in ensuring your family learns about hATTR amyloidosis-whether they have the condition or whether you are the only one who has received a diagnosis. By educating your family members about hATTR amyloidosis, you may inspire them to make more informed decisions about their health.
This guide includes information, tips, and suggestions that are designed to help you have meaningful discussions with your family about hATTR amyloidosis.
Abstract Source
https://www.hattrbridge.com/sites/default/files/pdfs/Family-Discussion-Guide.pdf