Key Information
Source
Change hATTR
Year
2019
summary/abstract
After being diagnosed with hATTR amyloidosis, it is normal to have a wide range of feelings and have questions about how your diagnosis will change your daily routine.
It is important to remember that these are normal feelings and that there is no right or wrong way to feel. While everyone's hATTR amyloidosis journey is different, it is important to live the life you want to live with hATTR amyloidosis. How can you Change the Course?
Telling Your Family
Talking to your family about your diagnosis is an important first step in your hATTR amyloidosis journey. Be prepared to explain what hATTR amyloidosis is, your symptoms and possible treatment options.
- Talk with your family about your fears and concerns
- Let others know when you need help or support
- Tell others what they can do to be helpful to you.
Abstract Source
https://www.hattrchangethecourse.com/wp-content/uploads/2019/12/US-TTR-1900249-hATTR-Change-the-Course-Patient-Resource-Guide-Low-Res-FINAL.pdf