community advocate

Fabio Almeida is the President of the Associacao Braseilera de Paramyloidose (ABPAR)external link, opens in a new tab. ABPAR promotes adequate means of treatment…

Deborah Boedicker is an active philanthropist. In addition to being a board member and treasurer for Mackenzie's Mission, she is board chair for MentorPrize; member…

Lance Miller, Chip Miller's (Elliott S. Miller) son, is a "chip off the old block." They were the best of friends sharing similar passions such as Corvettes, racing…

Michaely Rosas is President of a non-profit organization, Action for Amyloidosis, which is meant to raise awareness among patients suffering from amyloidosis. She…

My name is Anne Marie Carr and I was diagnosed with hATTR amyloidosis in September 2015 at the age of 57. My journey with this disease began in the Spring of 2010,…

Jodi Dewar is the President at Canadian Amyloidosis Support Network which is committed to improving survivability and quality of life of amyloidosis patients by…

Muriel Finkel is the President of Amyloidosis Group at Wood Dale Illinois which is a non-profit corporation, dedicated to the support of amyloidosis patients, care…

Mackenzie Boedicker is Founder, President, and Chairman of the Board for Mackenzie's Mission. She provides leadership, sets the strategic direction and oversees the…

Charlotte Haffner is the first Vanderbilt patient to receive both a heart transplant and a stem cell transplant. She has certainly learned that life is all about…

Mary O'Donnell is President/CEO at Amyloidosis Foundation. She has been a project manager at PAC Project Advisors from 1995 to 2005, where she managed multi-million…