Community Organization

Roland Straube is a founding member of Patientenverband "FAP e.V "external link, opens in a new taband has been the chairman of this self help group since the…

Fabio Almeida is the President of the Associacao Braseilera de Paramyloidose (ABPAR)external link, opens in a new tab. ABPAR promotes adequate means of treatment…

Carlos Heras-Palou qualified from the School of Medicine in Zaragoza (Spain) in 1988. Following House Officer and SHO jobs in England he obtained his FRCS in 1993…

Deborah Boedicker is an active philanthropist. In addition to being a board member and treasurer for Mackenzie's Mission, she is board chair for MentorPrize; member…

Lance Miller, Chip Miller's (Elliott S. Miller) son, is a "chip off the old block." They were the best of friends sharing similar passions such as Corvettes, racing…

Michaely Rosas is President of a non-profit organization, Action for Amyloidosis, which is meant to raise awareness among patients suffering from amyloidosis. She…

Marsha McWhinnie is a primary amyloidosis and multiple myeloma patient since diagnosis in May 2000, and has been on the receiving end of great care at Princess…

My name is Anne Marie Carr and I was diagnosed with hATTR amyloidosis in September 2015 at the age of 57. My journey with this disease began in the Spring of 2010,…

Jodi Dewar is the President at Canadian Amyloidosis Support Network which is committed to improving survivability and quality of life of amyloidosis patients by…

Mackenzie Boedicker is Founder, President, and Chairman of the Board for Mackenzie's Mission. She provides leadership, sets the strategic direction and oversees the…