Patient Stories
La Amiloidosis es una enfermedad que tiene varios tipos, uno de ellos y el que casualmente Mallorca, donde naci es la A.hereditaria por transtirretina el quinto…
My condition worsened until the beginning of August 2019. My legs were completely swollen; my ankles had become non-existent because they were so swollen. I started…
Friends and family celebrated with Cindy Catlett on her "re-birth" day, on September 24, 2019. The big event marked the first anniversary of her back-to-back heart…
When Greg first learned about a rare disease affecting his brother, he had no idea that the illness would come to define his own life, or that his search for…
His symptoms began with dizziness, shortness of breath, heart palpitations and edema in the ankles, feet and calves. After visiting with multiple doctors, in 2007…
Two days before he was scheduled to die, John Shields roused in his hospice bed with an unusual idea. He wanted to organize an Irish wake for himself. It would be…
For somebody in need of a diagnosis, the internet can be a dangerous tool.
However, for Darcy Tannehill, who had already dedicated most of her life to research…
For three years Aileen Watt and her husband Alex travelled over 200 miles every week from the north west of England to the Royal Free Hospital in Hampstead, so he…
In February 2014, Sondra Kunes was feeling a little more fatigued than usual, but wrote it off as being 54 and raising five children ranging from their early teens…
Dona Osterhout was only 48 years old when she noticed that she was having a hard time keeping up when she went hiking and biking with her family.
"At first, I…