Patient Stories

Retired ophthalmologist Merrill Oaks was enjoying an active life and spending time with his family when he started to experience symptoms of kidney failure at 77…

When Ricardo rides his stationary bike he leaves the memory of heart failure further and further behind. After he was diagnosed with amyloidosis, specialists at…

Just informing everyone that on September 1, 2017, I was diagnosed with a rare blood disease called Al Amyloidosis. I call it "Amy" for short. May this year I had…

I live in Los Angeles in California but, as a performer, have had the good fortune to travel and work internationally for the past 50 or so years. My amyloidosis…

My name is Jason Conway and I am a husband, father, teacher, and coach. I am 48 years old and have lived a pretty normal, healthy life. I have always been active…

Back in 2015, I went to see my primary care manager (PCM) several times because of fatigue and feeling feverish (when I didn't have a fever). My muscles and bones…

Three years ago a dream came true. After years of trying, l was blessed to give birth to my son. Shortly after giving birth, I began to experience a series of…

I am writing to tell my story and help others. Everybody is different, but a terrible, incurable, fatal disease equalizes us all. There is wisdom and understanding…

When Manuel Rivera-Alsina, MD, first started feeling tired and short of breath, he blamed it on getting older. But when Manual, a maternal fetal medicine doctor,…

Millen's down around 50 pounds in the past year, chasing a cure for a disease called amyloidosis that is particularly evil. He needs debilitating chemotherapy now…