Amyloidosis Support Groups Inc., nonprofit corporation was formed for the primary purpose of starting and maintaining Amyloidosis Support Groupsexternal link, opens…
His symptoms began with dizziness, shortness of breath, heart palpitations and edema in the ankles, feet and calves. After visiting with multiple doctors, in 2007…
Two days before he was scheduled to die, John Shields roused in his hospice bed with an unusual idea. He wanted to organize an Irish wake for himself. It would be…
For somebody in need of a diagnosis, the internet can be a dangerous tool. However, for Darcy Tannehill, who had already dedicated most of her life to research…
For three years Aileen Watt and her husband Alex travelled over 200 miles every week from the north west of England to the Royal Free Hospital in Hampstead, so he…
In February 2014, Sondra Kunes was feeling a little more fatigued than usual, but wrote it off as being 54 and raising five children ranging from their early teens…
Dona Osterhout was only 48 years old when she noticed that she was having a hard time keeping up when she went hiking and biking with her family. "At first, I…
Retired ophthalmologist Merrill Oaks was enjoying an active life and spending time with his family when he started to experience symptoms of kidney failure at 77…
When Ricardo rides his stationary bike he leaves the memory of heart failure further and further behind. After he was diagnosed with amyloidosis, specialists at…
Just informing everyone that on September 1, 2017, I was diagnosed with a rare blood disease called Al Amyloidosis. I call it "Amy" for short. May this year I had…