Community Center

The Amyloidosis Foundationexternal link, opens in a new tab began with the vision of two patients, Don Brockman and Dennis Krysmalski. Don's desire to support…

Amyloidosis Support Groups Inc., a nonprofit corporation was formed for the primary purpose of starting and maintaining Amyloidosis Support Groups throughout the…

Donations are welcomed in both money and awareness item purchases. We currently offer wrist bands, pins, note cards, and polo shirts. If you wish to make a donation…

Lipstick Angels utilizes nurturing beauty services and physical touch to restore, strengthen and protect the dignity, hope and self-respect of seriously ill…

Amyloidosis Foundation is empowering patients through comprehensive range of services, including accurate up to date information. To promote awareness of…

Bicep bunching may be a marker for ATTRwt. According to MedPage Today, spontaneous ruptures of the distal biceps tendon may be a marker of wild-type transthyretin (…

Have you been diagnosed with carpal tunnel syndrome? In both wrists? Are you a man over 50 or a woman over 60? Do you also suffer from congestive heart failure or…

I hope everyone had a wonderful Easter weekend! Being that this past Friday was Good Friday - dad had his chemo treatment last Thursday and started as usual -…

As I reflected upon this miraculous blessing in my own life I thought back on all of the moments and memories that I have had in these past nine years. I have…

It's been a couple of months now, and I'm pleased to say I am tolerating the new drug, Carfilzomib, brand name Kyprolis, very well. I'm now on the 'Dara' (…