Community Center
The most widely used system is the European modification of the original 3-stage Mayo 2004 system which uses Troponin T or I and NT-pro-BNP to divide patients into…
Recently I saw a movie with Robert Redford, "All is Lost". Takes me back. Before we were married my future wife and I charted a bare boat Morgan 29' sloop in the…
Rare Disease Day takes place every year on the last day of February. The purpose is to raise awareness about rare diseases and their impact on patient's lives. Most…
ALECT2 Amyloidosis Support is a Facebook group that was created on 14 May, 2016.
Dorothy Sintas-Abeyta is the patient representative of the ALect2 Alliance. When…
Amyloidosis Gelsolin Hereditary is a Facebook group that was created on 7 November, 2017.
Amyloidosis Fibrinogen is a Facebook group that was created on 2 April, 2019.
The people in this group have Fibrinogen Amyloidosis. You must answer the question to…
ApoA1 Amyloidosis is a Facebook group that was created on 6 March, 2018.
AA - Secondary Amyloidosis is a Facebook group that was created on 30 December, 2014.
This group is for patients and caregivers with Secondary Amyloidosis (AA) due…
Amyloidosis ATTRv (hATTR) - Hereditary - FAP - FAC is a Facebook group that was created on 7 September 2014.
Amyloidosis - Wild Type - ATTRwt - wtATTR is a Facebook group that was created on 27 June, 2017.
This group is for patients diagnosed with Wild Type Amyloidosis.