Community Center

Amyloidosis Foundation is empowering patients through comprehensive range of services, including accurate up to date information. To promote awareness of…

Bicep bunching may be a marker for ATTRwt. According to MedPage Today, spontaneous ruptures of the distal biceps tendon may be a marker of wild-type transthyretin (…

Have you been diagnosed with carpal tunnel syndrome? In both wrists? Are you a man over 50 or a woman over 60? Do you also suffer from congestive heart failure or…

I hope everyone had a wonderful Easter weekend! Being that this past Friday was Good Friday - dad had his chemo treatment last Thursday and started as usual -…

As I reflected upon this miraculous blessing in my own life I thought back on all of the moments and memories that I have had in these past nine years. I have…

It's been a couple of months now, and I'm pleased to say I am tolerating the new drug, Carfilzomib, brand name Kyprolis, very well. I'm now on the 'Dara' (…

Losing one's immune system is a serious consequence of a stem cell transplant, putting the body at risk for viral, fungal, and bacterial infections. Rebuilding the…

There are times when those afflicted with amyloidosis need assistance - a caregiver. In some instances, such as a stem cell transplant (SCT), the treatment is so…

The Adam Gardiner Fund Incorporation (AGF) raises money to support the Westmead Amyloidosis Centre in the treatment of amyloidosis, a group of diseases that cause a…

If you have been diagnosed with a rare disease, I'm sure that at some point you have met a nurse or a doctor who has never heard of your condition. Doctors and…