Coping/Self-Care

Dona Osterhout was only 48 years old when she noticed that she was having a hard time keeping up when she went hiking and biking with her family. "At first, I…

Retired ophthalmologist Merrill Oaks was enjoying an active life and spending time with his family when he started to experience symptoms of kidney failure at 77…

When Ricardo rides his stationary bike he leaves the memory of heart failure further and further behind. After he was diagnosed with amyloidosis, specialists at…

Just informing everyone that on September 1, 2017, I was diagnosed with a rare blood disease called Al Amyloidosis. I call it "Amy" for short. May this year I had…

I live in Los Angeles in California but, as a performer, have had the good fortune to travel and work internationally for the past 50 or so years. My amyloidosis…

I am grateful to tell the story of my journey in and through the world of hematology and blood dyscrasisas. As I read the plight of so many of my comrades with…

Deciding to leave your job following your hATTR amyloidosis diagnosis can be a difficult and personal decision. There is no right or wrong way to go about making…

In some cases, caring for a loved one with hATTR amyloidosis can become a full time job, which can result in many changes to your daily life. Taking quality time to…

As a caregiver for a loved one with hATTR amyloidosis, you begin to take on new role in your relationship. This often requires a major lifestyle change with new…

My name is Anne Marie Carr and I was diagnosed with hATTR amyloidosis in September 2015 at the age of 57. My journey with this disease began in the Spring of 2010,…