Educational Support
Jan 03, 2018
The term informed consent is mistakenly viewed as the same as getting a research participant's signature on the consent form. FDA believes that obtaining a…
Mar 21, 2017
The role of older generations in families with hereditary diseases has been recognised and associated to their function as guardians of the family's medical history…
Mar 16, 2017
You may ask yourself, "Why should I try something that researchers are not sure will work?" That is a good question. Being part of a clinical trial may have risks…
Cardiac Amyloidosis - What You Need to Know
January 20, 2024
12PM - 2:30PM ET
Please join Amyloidosis Support Groups on January 20th from 12:00 pm - 2:30 pm ET for…
Why is it called AA amyloidosis?
In the past, AA amyloidosis was referred to as "Secondary" or "Inflammatory" amyloidosis. These are no longer accepted names for…
AA amyloidosis, or secondary amyloidosis, is one type of the rare disorder amyloidosis. This disorder happens when proteins in your body mutate, changing form and…
This program is intended for people interested in learning about hATTR amyloidosis, including individuals diagnosed with hATTR amyloidosis, their families, and…
This program is intended for people interested in learning about hATTR amyloidosis, including individuals diagnosed with hATTR amyloidosis, their families, and…
How may carpal tunnel syndrome, numbness in hands or feet, shortness of breath, dizziness, and diarrhea be related to each other? These symptoms could be caused by…
Webinar AL Amyloidosis
On October 26, 2021 the first ever World Amyloidosis Day will be organized by Amyloidosis Alliance and patient organisations from 18…