Educational Support
My name is Anne Marie Carr and I was diagnosed with hATTR amyloidosis in September 2015 at the age of 57. My journey with this disease began in the Spring of 2010,…
Jodi Dewar is the President at Canadian Amyloidosis Support Network which is committed to improving survivability and quality of life of amyloidosis patients by…
Muriel Finkel is the President of Amyloidosis Group at Wood Dale Illinois which is a non-profit corporation, dedicated to the support of amyloidosis patients, care…
Mackenzie Boedicker is Founder, President, and Chairman of the Board for Mackenzie's Mission. She provides leadership, sets the strategic direction and oversees the…
Mary O'Donnell is President/CEO at Amyloidosis Foundation. She has been a project manager at PAC Project Advisors from 1995 to 2005, where she managed multi-million…
Julia earned her MS in Genetic Counseling from UC Irvine in 2007 and was certified by the American Board of Genetic Counseling (ABGC) in 2009. She is a Genetic…
The Society for Cardiovascular Magnetic Resonance (SCMR), a Society dedicated to improving cardiovascular health by advancing the field of cardiovascular magnetic…
Eliminating #healthdisparities. Promoting prevention of #heartdisease & #stroke via #education #research #advocacy abcardio.org
This is a non-fiction book that tells how I beat an incurable, terminal disease known as amyloidosis. Amyloidosis turned my heart, literally and figuratively, into…
It is now nearly four years since my husband, Doug, was diagnosed with an extremely rare disease called Amyloidosis.
It came out of the blue, though we now…