Hereditary amyloidosis (hATTR)

Deciding to leave your job following your hATTR amyloidosis diagnosis can be a difficult and personal decision. There is no right or wrong way to go about making…

It is important to talk to your employer about your diagnosis so that they can know how you're feeling and how it may affect your work. Your manager can only help…

Being diagnosed with hATTR amyloidosis can be overwhelming, frightening and hard to process. You may be asking yourself - where should I go from here? We have…

Family History Given the hereditary (runs in some families) nature of hATTR amyloidosis, you may have first become aware of hATTR amyloidosis through patterns in…

The FDA today granted Alnylam Pharmaceuticals approval for a first-in-class small interfering ribonucleic acid (siRNA) treatment-the first therapy indicated for…

The US Food and Drug Administration (FDA) has approved inotersen (Tegsedi, Akcea Therapeutics and Ionis Pharmaceuticals) for the treatment of polyneuropathy (PN) in…

A new hereditary ATTR (hATTR) amyloidosis treatment, inotersen, an investigational antisense drug, may not be far from a US Food and Drug Administration (FDA)…

In some cases, caring for a loved one with hATTR amyloidosis can become a full time job, which can result in many changes to your daily life. Taking quality time to…

As a caregiver for a loved one with hATTR amyloidosis, you begin to take on new role in your relationship. This often requires a major lifestyle change with new…

After being diagnosed with hATTR amyloidosis, it is normal to have a wide range of feelings and have questions about how your diagnosis will change your daily…