Hereditary amyloidosis (hATTR)
Telling your employer about your hATTR amyloidosis diagnosis is a personal choice. If you decide to tell your employer about your diagnosis, write down what you…
Are You Experiencing Symptoms and Suspect hATTR?
If you know you have a family history of hATTR amyloidosis, make sure to compile your healthcare records to…
Talking to your family members about your hATTR amyloidosis diagnosis is an important first step in your disease journey. You can help your family members…
The FDA announced that it has approved patisiran infusion for the treatment of patients with peripheral nerve disease caused by hereditary transthyretin-mediated…
Steven R. Zeldenrust, age 56, of Rochester, passed away on Wednesday, July 10, 2019, after a long battle with cancer. Steve is survived by his wife of 31 years, Deb…
In an interview with Rare Disease Report, Mathew Maurer, MD, Arnold and Arlene Professor of Cardiology at Columbia University, explained the standard of care and…
Hereditary transthyretin(TTR)-related amyloidosis (ATTRm amyloidosis) is an endemic/non-endemic, autosomal-dominant, early- and late-onset, rare, progressive…
Hereditary ATTR amyloidosis is an inherited genetic disease in which there is thickening and stiffening of the heart muscle, due to a build-up of abnormal protein.…
Hereditary ATTR amyloidosis is an inherited genetic disease which variably affects the nervous system and the heart. Hereditary ATTR amyloidosis was traditionally…
Transthyretin amyloidosis is a slowly progressive condition characterized by the buildup of abnormal deposits of a protein called amyloid (amyloidosis) in the body'…