News

Activity Description Achieving health equity, eliminating disparities, and improving health for all is the ideal goal within an organization. Closing the gaps to…

Individuals suffering with rare diseases had very few therapeutic options 40 years ago. But that began to change with the stroke of a pen by then-President Ronald…

Sessions on March 3, 2023 are targeted towards medical professionals while sessions on March 4, 2023 are targeted towards amyloidosis patients and caregivers. The…

Estimados Amilos, familiares y companeros: Tenemos la gran satisfaccion de invitaros este ano, y felices de podernos reunir en nuestro 4o Encuentro Anual de AMILO,…

Now in its 12th year, Rare Disease Week on Capitol Hill empowers and inspires hundreds of advocates each year. The connections you make during the week will impact…

Please join us on January 21st, 2023 from 12:00 pm - 3:00 pm ET for our next webinar on ATTRv and ATTRwt Amyloidosis. Our speakers include Cardiologist Mathew…

Prothena Presents Data Demonstrating Consistent Survival Benefit Observed with Birtamimab in Mayo Stage IV AL Amyloidosis Patients in Phase 3 VITAL Study at ASH 2022

The ASG has been holding this biennial support meeting since 2009. We expect more than 400 patients and caregivers. We will have amyloidosis researchers and…

Please join us on October 29th, 2022 from 12:00 pm - 3:00 pm ET for our next webinar on AL Amyloidosis. Our speakers include: Hematologists Dr. Morie Gertz-Mayo…

Sami L. Khella, MDexternal link, opens in a new tab and Shawna Feely, MS, LGC will join us for a one-hour program on hereditary neuropathies and the benefits of…