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For three years Aileen Watt and her husband Alex travelled over 200 miles every week from the north west of England to the Royal Free Hospital in Hampstead, so he could receive specialist life-prolonging treatment for the rare condition, amyloidosis.
In January of this year Alex sadly died at the age of 69, but his family say they will always be grateful for the treatment he received at the hospital, enabling him to live long enough to meet his three grandchildren.
Now they want to talk about the condition to raise awareness about the ground-breaking research work taking place. The National Amyloidosis Centre, based at the Royal Free Hospital, has been at the cutting edge of treatment and research into all aspects of the condition since 1999. It was established by Professor Sir Mark Pepys, the first UK physician specializing in amyloidosis.