Patient story

Former Penn State All-American defensive lineman Matt Millen's journey back to broadcast booth was chronicled in an episode of "The B1G Story" Tuesday night. Two…

I was diagnosed as a child with a disease called bronchiectasis. This chronic disease eventually caused my AA amyloidosis which affected my kidneys and eventually…

The Story of Ramona RARE DISEASE DAY Living with Autoimmune Neutropenia and AA Amyloidosis On the occasion of RARE DISEASE DAY I'd like to share a few words about…

March being Amyloidosis Awareness Month, it's a good time to tell the story of Steven Szymanski, who, until finally diagnosed with it, was roughly as familiar with…

Can you imagine living 11 years with a life-threatening disease you didn't know you had? For Walt, that's how long it took to learn that his symptoms were caused by…

When Greg first learned about a rare disease affecting his brother, he had no idea that the illness would come to define his own life, or that his search for…

His symptoms began with dizziness, shortness of breath, heart palpitations and edema in the ankles, feet and calves. After visiting with multiple doctors, in 2007…

Two days before he was scheduled to die, John Shields roused in his hospice bed with an unusual idea. He wanted to organize an Irish wake for himself. It would be…

For somebody in need of a diagnosis, the internet can be a dangerous tool. However, for Darcy Tannehill, who had already dedicated most of her life to research…

For three years Aileen Watt and her husband Alex travelled over 200 miles every week from the north west of England to the Royal Free Hospital in Hampstead, so he…