Education

Amyloidomas are benign tumorlike lesions consisting of localized deposits of amyloid and are the rarest form in the group of amyloidosis-related lesions. Diagnosis…

Sequence Mutations of Human Transthyretin (reported through 8/2/2001)

f you suspect you might be at risk for hereditary ATTR (hATTR) amyloidosis, it’s important that you talk to your doctor. Here are some tips to prepare for the…

Awareness among patients, and even physicians, remains low, which results in ATTR‑CM being significantly underdiagnosed.Underdiagnosis and delayed diagnosis occur…

ISA GuidelinesTissue Biopsy for the Diagnosis of Amyloidosis: Experience From Some Centres external link, opens in a new tab(paper from ISA’s Tissue Diagnosis…

Principles of treatmentTreatment of all types of amyloidosis is currently based on the following principles:Reducing the supply of amyloid forming precursor…

Why is it called AA amyloidosis? In the past, AA amyloidosis was referred to as "Secondary" or "Inflammatory" amyloidosis. These are no longer accepted names for…

AA amyloidosis, or secondary amyloidosis, is one type of the rare disorder amyloidosis. This disorder happens when proteins in your body mutate, changing form and…

In this edition we hear from John Hicks and his experience of being a carer to his wife Joyce for the last 6 years. We also have an update from Gary Mines, who was…

When we are experiencing extreme stress, our ability to communicate diminishes massively. We experience lack of clarity, confusion, brain fog, and 'rabbit in the…