Education

hATTR amyloidosis is an inherited condition, and each child of one parent with hATTR amyloidosis has a 50% chance of inheriting the genetic variant, or change, that…

This Infosheet explains what a well-balanced diet is, what can make it difficult to maintain when you are an AL amyloidosis patient, when a special diet might be…

Sodium is a mineral that is important for maintaining normal fluid balance in the body. It is found naturally in foods and is also added to certain foods. The daily…

Cardiac amyloidosis occurs when plaques of protein byproduct called amyloid build up in heart muscle, affecting its ability to pump blood. To confirm a diagnosis…

People living with rare diseases face a unique set of challenges, from reaching a timely and accurate diagnosis to accessing treatment. Although individual rare…

Wild-type ATTR is also referred to as ATTRwt. It is not caused by any known genetic mutations, such as in the case of hereditary forms of the disease (hATTR). This…

In this episode, Frederick Ruberg, MDexternal link, opens in a new tab, and Mathew Maurer, MDexternal link, opens in a new tab, discuss key topics in cardiac…

We recommend that patients with myeloma and related disorders, whether on or off chemotherapy, receive COVID vaccination as soon as it is available and offered to…

When a family member has been diagnosed with hATTR amyloidosis, the range of symptoms that come with the disease may require a loved one to become a caregiver.…

hATTR amyloidosis is a genetic disorder that may affect you and others in your family. An open and honest conversation about your experience may encourage others to…