Patient Education

Sometimes called "compassionate use", expanded access is a potential pathway for a patient with a serious or life-threatening disease or condition to try an…

Genetic testing uses laboratory methods to look at your genes, which are the DNA instructions you inherit from your mother and your father. Genetic tests may be…

Amyloidosis is a disease that develops when abnormally folded proteins collect together to form amyloid fibrils, which deposit in various organs and cause organ…

To prevent the progression of amyloidosis and the damage it can cause, your doctor should recommend a treatment plan that includes certain medications or procedures…

Amyloidosis is a rare disease that has no cure. However, with prompt and ongoing treatment, you can help decrease symptoms and prevent or delay long-term…

The term informed consent is mistakenly viewed as the same as getting a research participant's signature on the consent form. FDA believes that obtaining a…

You may ask yourself, "Why should I try something that researchers are not sure will work?" That is a good question. Being part of a clinical trial may have risks…

It is believed that exercise is beneficial for the general well-being of patients with amyloidosis. If there are amyloid deposits in the heart then exercise should…

Many patients with AL amyloidosis should limit their fluid intake. This advice is extremely important but is often overlooked. Fluid intake should be steady and…

Peripheral neuropathy: Medications that may help to alleviate neuropathic pain include gabapentin, pregabalin and duloxetine. Medical staff can give advice…