Patient Education

Patients should tell the medical staff about any diarrhea they experience. Medications such as opioids (codeine and loperamide) may help by reducing gut motility.…

Both AL amyloidosis itself and treatment side effects may cause weight loss. Sometimes patients find it hard to eat and drink enough because of feeling generally…

Patients with AL amyloidosis may experience extreme tiredness, either due to the amyloidosis itself or as a side effect of some chemotherapy drugs. Tiredness can be…

Fluid overload is the most common serious toxicity experienced by patients with AL amyloidosis. Many patients with AL amyloidosis have amyloid deposits in the…

After you are diagnosed with cancer, it's important to think about the different costs that could add up during treatment and recovery. This can be difficult, since…

Principles of treatmentTreatment of all types of amyloidosis is currently based on the following principles:Reducing the supply of amyloid forming precursor…

Why is it called AA amyloidosis? In the past, AA amyloidosis was referred to as "Secondary" or "Inflammatory" amyloidosis. These are no longer accepted names for…

AA amyloidosis, or secondary amyloidosis, is one type of the rare disorder amyloidosis. This disorder happens when proteins in your body mutate, changing form and…

In this edition we hear from John Hicks and his experience of being a carer to his wife Joyce for the last 6 years. We also have an update from Gary Mines, who was…

When we are experiencing extreme stress, our ability to communicate diminishes massively. We experience lack of clarity, confusion, brain fog, and 'rabbit in the…