Patient Education

Principles of treatmentTreatment of all types of amyloidosis is currently based on the following principles:Reducing the supply of amyloid forming precursor…

Why is it called AA amyloidosis? In the past, AA amyloidosis was referred to as "Secondary" or "Inflammatory" amyloidosis. These are no longer accepted names for…

AA amyloidosis, or secondary amyloidosis, is one type of the rare disorder amyloidosis. This disorder happens when proteins in your body mutate, changing form and…

In this edition we hear from John Hicks and his experience of being a carer to his wife Joyce for the last 6 years. We also have an update from Gary Mines, who was…

When we are experiencing extreme stress, our ability to communicate diminishes massively. We experience lack of clarity, confusion, brain fog, and 'rabbit in the…

Non-Liver Transplant Therapies for ATTR Amyloidosis 2022 lists different medications and therapies for treating ATTR Amyloidosis, a genetic disorder characterized…

Antibodies (Plasma Cells) Therapy for AL Amyloidosis 2022 lists different medications and therapies for treating AL amyloidosis, a blood disorder characterized by…

Winter storms and cold temperatures can be dangerous. Stay safe and healthy by planning ahead. Prepare your home and vehicles. Prepare for power outages and outdoor…

Winter weather wheelchair tips are not for everyone. They're for those wheelchair users whose destiny didn't include a nice warm corner of the world.

Amyloidosis is a group of diseases which are characterized by the build-up of abnormal deposits of amyloid fibrils. These amyloid fibrils, composed of misfolded…